Action Cancer is Northern Ireland’s leading, local cancer charity and their mission is to save lives and support local people through cancer awareness, prevention, detection and support. Action Cancer offers a range of support services to any adult or child affected by cancer (person diagnosed and family/friends/carers) from diagnosis stage, during or after treatment. Services are also available to anyone who has been bereaved through cancer or is currently undergoing genetic cancer testing. Action Cancer has supported the BRCA Link NI/ CCRCB conference in recent years.

www.actioncancer.org

 

Breast Cancer Care is the the only UK wide charity providing care, information and support to people affected by breast cancer.

www.breastcancercare.org

 

Breast Cancer Now is the UK’s largest breast cancer research charity, created by the merger of Breast Cancer Campaign and Breakthrough Breast Cancer.

www.breastcancernow.org

 

BRCA Link NI is a voluntary organisation in Northern Ireland helping people to access information and support about BRCA genetic mutations whilst raising awareness of Hereditary Breast and Ovarian Cancer.

www.brcani.co.uk

 

The Centre for Cancer Research and Cell Biology (CCRCB) at Queens University Belfast is working with partners around the world in developing cancer treatments and pioneering advances in patient care. Each year research staff host a patient information conference for those affected by BRCA mutations in conjunction with BRCA Link NI and Action Cancer.

www.qub.ac.uk/ccrcb

 

FORCE: Facing our risk of cancer empowered. In the USA since 1999, FORCE has been the voice of experience and has empowered cancer survivors and those at high risk for hereditary breast and ovarian cancer. FORCE provides support, education and awareness to help those facing hereditary breast and ovarian cancer know their options and make informed decisions. FORCE has taken a leadership role in guiding critical research and policy issues that impact the hereditary cancer community.

www.facingourrisk.org

 

Macmillan Cancer Support provides specialist health care, information and financial support to people affected by cancer.

www.macmillan.org.uk

Menopause Matters is an award winning, independent website providing up-to-date, accurate information about the menopause,  symptoms and treatment options.

www.menopausematters.co.uk

 

Prevent Breast Cancer is a charity based at the Nightingale Centre, Wythenshawe, Manchester – Europe’s first purpose built breast cancer prevention centre. Unlike many cancer charities, their focus is on preventing, rather than curing by promoting early diagnosis, screening and lifestyle changes.

www.preventbreastcancer.org.uk

 

Irish Cancer Society is Ireland’s national cancer charity dedicated to cancer prevention and improving life for cancer survivors.

www.cancer.ie

 

Marie Keating Foundation is based in Dublin and provides cancer information and support.  I was asked to provide information regarding BRCA for their website and they have information events specifically about hereditary cancer. www.mariekeating.ie

 

Other websites:

There are many websites offering information and advice about cancer prevention and cancer treatment however not all of these have a sound scientific base.

 

The following sites will provide reliable information:

www.nhs.uk/livewell

for information about healthy lifestyle and disease prevention

www.nhs/news/cancer

with news of research related to cancer

www.cancer.net

provided by American Society of Clinical Oncology

www.cancer.org

provided by American Cancer Society

www.nih.gov

The National Institute of Health is a US federal organisation with 27 institutes and centres each with a specific research agenda